Osler's Web: Inside the Labyrinth of the Chronic Fatigue Syndrome Epidemic



[Read] ➺ Osler's Web: Inside the Labyrinth of the Chronic Fatigue Syndrome Epidemic ➶ Hillary Johnson – E17streets4all.co.uk A relentless, meticulous, and highly persuasive expos by a journalist who spent nine years investigating the medical research establishment s failure to take seriously chronic fatigue syndrome In a ch A relentless, meticulous, and highly Inside the PDF ↠ persuasive expos by a journalist who spent nine years investigating the medical research establishment s failure to take seriously Osler's Web: eBook ´ chronic fatigue syndrome In a chronology that runs fromto , Johnson crams in fact after telling fact, building up a dismaying picture of a rigid Web: Inside the Kindle Ñ and haughty biomedical research establishment unwilling or unable to respond to the challenge of a multifaceted disease for which a causative agent has yet to be found A compelling, well documented account Kirkus Reviews.Osler's Web: Inside the Labyrinth of the Chronic Fatigue Syndrome Epidemic

Is a well known author, Inside the PDF ↠ some of his books are a fascination for readers like in the Osler's Web: Inside the Labyrinth of the Osler's Web: eBook ´ Chronic Fatigue Syndrome Epidemic book, this is one of the most wanted Hillary Johnson author readers around the world.

Osler's Web: Inside the Labyrinth of the Chronic Fatigue
    Osler's Web: Inside the Labyrinth of the Chronic Fatigue be found A compelling, well documented account Kirkus Reviews."/>
  • Paperback
  • 736 pages
  • Osler's Web: Inside the Labyrinth of the Chronic Fatigue Syndrome Epidemic
  • Hillary Johnson
  • English
  • 16 July 2018
  • 0595348742

10 thoughts on “Osler's Web: Inside the Labyrinth of the Chronic Fatigue Syndrome Epidemic

  1. says:

    The disease described in this book has since been identified as Myalgic encephalomyelitis Chronic fatigue syndrome ME CFS It s a chronic, debilitating multi system illness affecting the neurological, endocrine, and immune systems For an updated account of this affliction, I recommend the recent documentary Forgotten Plaque M.E and the Future of Medicine, available to stream on .The legacy of this syndrome continues to this day..https www.sfgate.com news article R The disease described in this book has since been identified as Myalgic encephalomyelitis Chronic fatigue syndrome ME CFS It s a chronic, debilitating multi system illness affecting the neurological, endocrine, and immune systems For an updated account of this affliction, I recommend the recent documentary Forgotten Plaque M.E and the Future of Medicine, available to stream on .The legacy of this syndrome continues to this day..https www.sfgate.com news article R

  2. says:

    This book really gives you an understanding of how and why M.E has been stigmatized, ridiculed and ignored as much as it has It makes it very clear that it was not a mistake or an oversight at all but that it was in fact utterly deliberate.The pure stupidity and lack of basic human compassion involved is astounding It s important to know how we ve ended up in this mess so we can see how we might get ourselves out I think It s also important that we not underestimate how low these people will This book really gives you an understanding of how and why M.E has been stigmatized, ridiculed and ignored as much as it has It makes it very clear that it was not a mistake or an oversight at all but that it was in fact utterly deliberate.The pure stupidity and lack of basic human compassion involved is astounding It s important to know how we ve ended up in this mess so we can see how we might get ourselves out I think It s also important that we not underestimate how low these people will go its lower than you could even imagine.This is a must read if you are well enough to tackle such a long non fiction book, it ll just blow your mind and really fire you up about how badly we have all been treated historically and thewell you d have to call them evil, people behind it all Whether you have M.E or one of the many other diseases commonly misdiagnosed as CFS you ll be outraged.It is also very important to read this book together with information which explains why CFS as a concept must be abandoned and why renaming CFS as M.E or ME CFS is not the way forward.You need to also know that M.E patients were treated appropriately and correctly diagnosed until around 1988, when there was an increase in the number of M.E patients and outbreaks in the US Some medical insurance companies and others decided that they would prefer not to lose many millions of dollars on so many new claims and so they created a new vague fictional disease category called Chronic Fatigue Syndrome to try to confuse the issue of M.E and to hide M.E in plain sight.Under the cover of CFS certain vested interest groups have assiduously attempted to obliterate recorded medical history of M.E even though the existing evidence has been published in prestigious peer reviewed journals around the world and spans over 70 years.M.E is a distinct, scientifically verifiable and measurable, acute onset, organic neurological disease CFS in contrast, is not a distinct disease CFS doesn t exist Every diagnosis of CFS based on any of the CFS definitions can only ever be a misdiagnosis A watebasket diagnosis.The fact that a person qualifies for a diagnosis of CFS a does not mean that the patient has M.E., and b does not mean that the patient has any other distinct illness named CFS M.E and CFS are not the same.Far fewer than 0.5% of the population has the distinct neurological disease known since 1956 as Myalgic Encephalomyelitis.Chronic Fatigue Syndrome is an artificial construct created in the US in 1988 for the benefit of various political and financial vested interest groups It is a mere diagnosis of exclusion based on the presence of gradual or acute onset fatigue lasting 6 months If tests show serious abnormalities, a person no longer qualifies for the diagnosis, as CFS is medically unexplained A diagnosis of CFS does not mean that a person has any distinct disease including M.E According to the latest CDC estimates, 2.54% of the population qualify for a CFS mis diagnosis.The patient population diagnosed with CFS is made up of people with a vast array of unrelated illnesses, or with no detectable illness However, while CFS is not a genuine diagnosis, those given this misdiagnosis are in many cases significantly or even severely ill and disabled CFS is made up of people with cancer, MS, Lyme disease, depression and hundreds of other unrelated conditions.Sub grouping different types of CFS, refining the bogus CFS definitions further or renaming CFS with some variation on the term M.E such as ME CFS would achieve nothing and only create yetconfusion and help to continue and further entrench the mistreatment and abuse.The problem is not that CFS patients are being mistreated as psychiatric patients some of those patients misdiagnosed with CFS actually do have psychological illnesses There is no such distinct disease s as CFS that is the entire issue.Due to outrageous political influences on medicine and govermnent policy, the vast majority of M.E patients will not be able to be correctly diagnosed with M.E Most M.E patients will unfortunately be misdiagnosed with CFS It is extremely important to note, however, that only a very tiny percentage of those told they have CFS will be M.E patients The overwhelming majority of those misdiagnosed with CFS do NOT have M.E CFS is NOT just another term for M.E.The name Myalgic Encephalomyelitis must be fully restored to the exclusion of all others and the World Health Organization classification of M.E as a distinct neurological disease must be accepted and adhered to in all official documentations and government policy M.E patients must again be diagnosed with M.E and treated appropriately for M.E based on actual M.E research For this to happen, there is a real need for patients and others to participate in genuine advocacy and activism.The bogus disease category of CFS must be abandoned All those misdiagnosed with CFS must immediately reject this harmful misdiagnosis and begin the search to find their correct diagnosis whether this be M.E., PVFS, depression, cancer, or any other disease Correct diagnosis is vital in obtaining the correct treatment M.E is not the same thing as CFS or CFIDS or ME CFS but this book is a M.E book in most of the descriptions of the disease, absolutely We do know that M.E is not caused by a retrovirus but an enterovirus with a 4 7 day incubation period however For political information on M.E and why M.E is not CFS see books and articles by Dr Hyde and Dr Dowsett.Jodi Bassett, The Hummingbirds Foundation for M.E

  3. says:

    A real nasty story that makes the CDC s work in Contagion seem like a fairytale But unfortunately, as much as Ms Johnson relays the complex and unjust political history of the illness, she seems to want to simplify the complexity of the illness itself Its been 15 years since this book was published, and although there is still some stigma involved with the diagnosis, a person today who comes to their doctor presenting with CFS is much less likely to be laughed out of the office than he or s A real nasty story that makes the CDC s work in Contagion seem like a fairytale But unfortunately, as much as Ms Johnson relays the complex and unjust political history of the illness, she seems to want to simplify the complexity of the illness itself Its been 15 years since this book was published, and although there is still some stigma involved with the diagnosis, a person today who comes to their doctor presenting with CFS is much less likely to be laughed out of the office than he or she would have been in the 80s or 90s Nonetheless, the consensus on what causes CFS, or evenimportantly, how to treat it, is still a bucket full of guesses We ll hopefully see where the cards fall on the etiology of the illness in the coming years, but it seems that the source of injustice that Ms Johnson doesn t fully acknowledge in this book is that CFS may well be an illness that with today s let alone yesterday s medical knowledge is unable to be understood Still, after reading about all the losers in positions of power at major governmental medical establishments can t help but wonder what if

  4. says:

    Wow, this book is intensely detailed 700 pages telling the story of CFS from 1980 to 1995 Having CFS myself, I did not have the time to dedicate to reading this entire tome, but the story it tells is eye opening and shocking Hillary Johnson, the author, is a seasoned journalist and, had she not so well covered both sides of the story, I would have thought it was sensationalist But it s not Things have changed a lot in the me cfs world since 1995, but the work Ms.Johnson assembled is a recor Wow, this book is intensely detailed 700 pages telling the story of CFS from 1980 to 1995 Having CFS myself, I did not have the time to dedicate to reading this entire tome, but the story it tells is eye opening and shocking Hillary Johnson, the author, is a seasoned journalist and, had she not so well covered both sides of the story, I would have thought it was sensationalist But it s not Things have changed a lot in the me cfs world since 1995, but the work Ms.Johnson assembled is a record worth reading of how it all went horribly wrong from the start

  5. says:

    Doctors and scientists are infallible and without prejudice Yeah, right Read this and see how untrue that is A strong account of how the medical and scientific establishment willfully ignored the evidence of Chronic Fatigue Syndrome and Fibromyalgia.

  6. says:

    This book is very shocking and upsetting but a person should know the truth.

  7. says:

    this is one heck of a thorough investigative trawl through the history of American research into CFS As a man who s had moderate CFS for 8yrs, I was sure interested to learn what a mess of misunderstandings have led to the current stupidly dominating view that CFS cases should be handed to psychiatrists There isn t another book that interprets so thoroughly for the educated layperson the various attempts to seek better clinical understanding, and the lack of overall co ordination, or even acce this is one heck of a thorough investigative trawl through the history of American research into CFS As a man who s had moderate CFS for 8yrs, I was sure interested to learn what a mess of misunderstandings have led to the current stupidly dominating view that CFS cases should be handed to psychiatrists There isn t another book that interprets so thoroughly for the educated layperson the various attempts to seek better clinical understanding, and the lack of overall co ordination, or even acceptance that CFS exists as an identifiable disease It sure was daunting to try to read, so I skimmed my way through, and got an idea of how hard CFS is for medics as well as for patients New breakthroughs will come, of course, because there are always a few brilliant researchers with the right hunch or maybe, like vitamin C for sailor s scurvy, the answer s already out there but being systematically ignored I haven t found it, it s not in this book So, still exhausted with CFS, but a little better informed, I got back to what works for me, which is rest, good humour, and mindfulness

  8. says:

    It was good to read an investigative approach to the history behind the diagnosis of Chronic Fatigue Syndrome and how that history affects the way the disease is perceived, researched, and treated today There is a lot of insight here However, the author takes WAY too long to tell the story, annoyingly leaving the reader hanging every couple pages at mini cliffhangers in each of multiple co occurring stories If you have CFS, you know how hard it is to hold short term RAM memory, so for any It was good to read an investigative approach to the history behind the diagnosis of Chronic Fatigue Syndrome and how that history affects the way the disease is perceived, researched, and treated today There is a lot of insight here However, the author takes WAY too long to tell the story, annoyingly leaving the reader hanging every couple pages at mini cliffhangers in each of multiple co occurring stories If you have CFS, you know how hard it is to hold short term RAM memory, so for anyone, especially those wit CFS or similar condition, this gimmick for creating suspense and intrigue just gets old and frustrating

  9. says:

    Fascinating history of this controversial disease Anti climatic end,

  10. says:

    Another story about medicine not listening to patients and allowing a series of symptoms to get out of control Never minding about the cause s , just focus on the treatment and cure if there is any.

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